In The News
Waiting……
The usual chaotic kind of few weeks. Husband has been feeling the pressure of living life with….well me, I guess. I think since going on the waiting list the reality has hit home that things are getting serious. He likes to be the provider and protector. Unfortunately his job is unstable and is constantly in…
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Emricasan Hoping to Be First Fatty Liver Drug Nicole Cutler Apr 15th, 2015 An experimental drug for non-alcoholic fatty liver disease has received high marks in a mid-stage trial. An estimated one quarter of American adults has non-alcoholic fatty liver disease (NAFLD), a growing health problem that can be hazardous if not addressed. Currently, lifestyle…
Read MoreOh to be in A&E – not!
Spent the morning in A and E. The previous evening I developed an intense pain near my tummy button which lasted for several hours. I do have a couple of digestive disorders so put the pain down to those. I felt much easier in the morning but had a horrible taste of blood in my…
Read MoreMixed Emotions
It’s been a long night. The donors organ was not up to standard. Lesions were found on the kidney and it was felt that it was likely to be cancerous with a risk the cancer has spread, compromising the liver. I feel lots of emotions, sorry to have put my children through such an ordeal,…
Read MoreGot The Call!!!!!!!!
Well I got the call at about 6.30pm tonight. I’m here now with my husband having left 3 very distressed children with equally distressed parents. All I know at the moment is it’s a cardiac donor as apposed a brain dead donor. Either way, there’s a family grieving and that’s hard.
Read MoreShocking transformation of ex-bodybuilder given just three weeks to live after being diagnosed with liver cancer which he blames on 10,000 calorie per day pizza and energy drink diet
Former bodybuilder with liver cancer is given just three weeks to live Shocking transformation of ex-bodybuilder given just three weeks to live after being diagnosed with liver cancer which he blames on 10,000 calorie per day pizza and energy drink diet Dean Wharmby, 39, was told he had just three weeks to live in November…
Read MoreA Tough Day at the Clinic….
Clinic appointment today. Its fair to say the appointment could have gone better. There is evidence from the fibro scan and the mri of extensive scarring and my blood tests show significant deterioration of the livers function. My bilirubin is 112, however, he felt I looked better than I should! He told me PBC patients…
Read MoreDetox anyone?
Detoxing, desludging, de-whatevering your liver (or trying to do so) is a complete waste of time and money! This article seems to agree! http://www.upworthy.com/inevitably-someone-will-say-but-my-juice-cleanse-worked-no-it-really-didnt?c=tkp1
Read MoreUK Guidelines for Transplant Criteria
I’m looking into the subject of cannabis use to try and ascertain what the official position is on whether use of cannabis prior to transplant is acceptable or is grounds for refusing a transplant. In the US, I have not been able to find an authority who decides such things and currently it appears that…
Read MoreRaw Emotions
Spent some time with my brother today. He took me to one side and said he had been to see his doctor for the third time. He is waiting on them to complete a form for the transplant team in order for him to pursue the possibility of being my living donor. I can’t put…
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