Sue’s Blog

Sue Bennett – World Class Athlete! 4 Years Post Transplant

I’ve known Sue a long time! We got to know each other when we were both struggling to survive. Sue is an inspiration to anyone and everyone and she continues to do so much work in support of Liver Disease. I featured her blog during her transplant and hopefully you will read it also. https://liverswithlife.com/category/suesblog/…

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Transplant – The Big Day.

The big day. My alarm goes off at 4am, there was no need I was already awake. I don’t feel scared, more of a feeling of nervous anticipation. Same kind of feeling I had before my C sections with my children.  I take a shower, as I come out of the bathroom my husband is…

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Sue's Transplant Blog

                      June 10th It’s been a tough week. Have felt increasingly unwell seen at home by a doctor from the local surgery with talk of admitting me to hospital or organising respite care of some form. My own GP was obviously concerned and got in touch…

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Tests, tests, tests, tired of tests…

Yesterday I had an ultra sound, don’t know the results although I felt a vibe that something wasn’t sitting right with the  gentleman who was scanning me. He was hesitant at times at one point switched the machine off and put the lights on then changed his mind and scanned again. Different day, different hospital.…

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Waiting……

The usual chaotic kind of few weeks. Husband has been feeling the pressure of living life with….well me, I guess. I think since going on the waiting list the reality has hit home that things are getting serious. He likes to be the provider and protector. Unfortunately his job is unstable and is constantly in…

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Oh to be in A&E – not!

Spent the morning in A and E. The previous evening I developed an intense pain near my tummy button which lasted for several hours. I do have a couple of digestive disorders so put the pain down to those. I felt much easier in the morning but had a horrible taste of blood in my…

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Mixed Emotions

It’s been a long night. The donors organ was not up to standard. Lesions were found on the kidney and it was felt that it was likely to be cancerous with a risk the cancer has spread, compromising the liver. I feel lots of emotions, sorry to have put my children through such an ordeal,…

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Got The Call!!!!!!!!

Well I got the call at about 6.30pm tonight. I’m here now with my husband having left 3 very distressed children with equally distressed parents. All I know at the moment is it’s a cardiac donor as apposed a brain dead donor. Either way, there’s a family grieving and that’s hard.

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A Tough Day at the Clinic….

Clinic appointment today. Its fair to say the appointment could have gone better. There is evidence from the fibro scan and the mri  of extensive scarring and my blood tests show significant deterioration of the livers function. My bilirubin is 112,  however,  he felt I looked better than I should!   He told me PBC patients…

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Raw Emotions

Spent some time with my brother today. He took me to one side and said he had been to see his doctor for the third time. He is waiting on them to complete a form for the transplant team in order for him to pursue the possibility of being my living donor. I can’t put…

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